Items tagged ROHHADSuperheroes

Marvel Universe LIVE! #GOMADJUMPFORROHHAD

We are delighted to share with all our amazing supporters wonderful news. The team behind Marvel Universe LIVE! have been in touch with Aaron Hunters family and they have shown an incredible amount of support for him, his awareness campaign and the children battling ROHHAD. 4 of the actors who play the superheroes in the LIVE! show have completed the #GOMADJUMPFORROHHAD challenge and Aaron was so happy watching the video; he thanks them for completing the challenge for all the ROHHAD kids. Please click the link below to the Daily Record Article to see the challenge video and Aaron's response to it.

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They have also invited Aaron along to the LIVE! show when it comes to the SSE Hydro in Glasgow in January 2017. Aaron will have the opportunity to meet some of the heroes and watch the incredible Marvel Universe LIVE! show. As you can imagine he is already counting the sleeps. To help Aaron in his mission to raise awareness and much needed funds for medical research they have donated an incredible 10 Family VIP tickets for the LIVE! show when it is in Glasgow; to the ROHHAD Association. They will be raffled off to help raise funds for medical research into ROHHAD.

To be in with a chance of winning 1 of the family VIP tickets (family of 4) to see Marvel Universe LIVE! in Glasgow in January 2017 all you have to do is enter the Raffle. Tickets cost £5.00 and you can enter via this just giving campaign page

https://www.justgiving.com/campaigns/charity/rohhad/aaronsmarvelloussuperheroesraffle

Please remember to leave your contact details on the Just Giving page and do not click anonymous donation as we will not be able to process your entry without your name and email or contact number.

All of the team at the ROHHAD Association are so grateful to Claire and her team at Marvel Universe LIVE! for the support they have shown to Aaron and the children around the globe battling ROHHAD. Aaron has been incredibly happy since seeing this video and he reckons his special friends around the world will be too. He has even asked if this means that the real Iron Man (Robert Downey Jnr) will do the challenge now !! we can but hope ! Whatever happens though Aaron is on top of the world just now with the support he has had from Marvel Universe LIVE! and is counting the sleeps until January!!

If you want to help then you too can #GOMADJUMPFORROHHAD and text 'Jump29 £3.00' to 70070 or you can enter the Marvel Universe LIVE! raffle. You can also contact Lisa on 07917225276 to purchase Raffle tickets or Louise on 07881100083.

MUST SEE – #GOMADJumpForROHHAD

YOU NEED TO SEE THIS PLEASE WATCH THE VIDEO

This is Aaron's video message that he wants everyone to see. In it he tells you all how ROHHAD has affected him, what his future may hold and how he really needs YOUR HELP. Please take the time to watch Aaron's video to YOU and then do his social media Challenge. Help him and all the other children battling ROHHAD. Help his message reach all the superheroes in the world. Aaron has challenged all his family and friends in primary 2; he has also challenged his favourite superheroes Iron Man, Captain America, Thor, Hawkwye, Black Widow and Nick Fury. Share his video so this message reaches the actors who play the superheroes. Then become a hero yourself by doing the challenge and donating.

All you need to do is

1. #GOMADJumpForROHHAD, find a puddle (it can be the snow, beach or pool for those in warmer or colder climates than here in Scotland) and run and jump up and down for 1 full minute.

2. Remember to film your challenge and don't forget to challenge 3 more people.

3. Upload your video to social media and donate by texting JUMP29 £3.00 to 70070 or donate via our website.

4. Tag us in the video via ROHHAD Association on FB and ROHHAD_GLOBAL on twitter

We cannot wait to see all the videos.

Finally today as we post this Aaron has just watched an endocrine Dr in America Dr Sprague do the challenge and he now wants to ask his consultants at the Children's Hospital in Glasgow to do it too !! as well as his nurses and the sleep team !! his request honest !!. So Dr Shaikh, Dr Davies, Dr Barclay, Dr Noonan, Lynda, Ethel and Andrew and all his sleep team will you accept the challenge ?? we hope so!!.

Be a true superhero today and #GOMADJumpForROHHAD

Thanks

DONATE by texting JUMP29 £3.00 to 70070 or via our website today just click the donate now button

Children helping Children

Our super brave ROHHAD children who battle daily to survive have a group of new ROHHAD heroes helping them. Lauren Hunter (Aaron's big sister), has co-written a beautiful song for the ROHHAD children and she invited her friends from Singer Station School to help her perform the song. Lauren and the singer station children hope that their song will help raise awareness and much needed funds for medical research to help all the ROHHAD children and their families.

This is the song called 'Light the World for You' and you can buy it from itunes for 79p with all proceeds going to the charity. It is also available to buy on all major online music stores. If everyone you know and everyone they know buys this song research will begin soon in the UK. So please share it with everyone all your family and friends ask them to view it and support us by buying it. Children helping children ! they are true ROHHAD heroes. Inspiring ( search 'Light the World for You' by Lauren Hunter to buy) Thank you for your support

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