Events

There are lots of amazing and fun ways to raise funds for ROHHAD research.

Whether you want to do something inspiring on your own or organise an event, contact us and we will help you in any way we can.

Here are some ideas that you may want to follow:

GO Mad Jump For ROHHAD join Aaron and Robert Downey Junior in the muddy puddle challenge

Individual or team sponsored events.

Sponsored sporting activities. Sign up for our ZERO TO HERO Challenge.

Sponsored Climb of a mountain like Ben Nevis or Snowdon or even the famous “Three Peaks Challenge.”

Sponsored Silence.

Out of Uniform day.

Sponsored Pyjama day.

Sponsored Bunjee Jump or Parachute jump.

Give up your favourite food for a month like chocolate ! Remember ROHHAD children have very strict diets with no fat and can rarely eat something like chocolate.

Cut your hair, sit in a bath of baked beans and so on, the list is endless.

Organise a night event or day event for all your friends and family or your local community.

Ladies night.

Quiz night.

Race night.

Family fun night or day fayre.

Psychic night.

Psychic fayre.

Local supermarket Bag Packing day.

Ask your school to hold a fundraising day .

Car boot.

Coffee Morning.

Bring a pound to work day for ROHHAD association.

A night in with friends and donate the money you would have spent on a night out!

Ask your local soft play centre to have a ‘Go Mad for ROHHAD’ day (the children with ROHHAD often cant go to soft play because they cant run around or because they find the noise and lots of people overwhelming). ‘Go Mad for ROHHAD means the kids are running around having fun for those who cannot and raising money at the same time to help them.

Whatever you do decide to do let us know. We would love to hear about how you are going to help the ROHHAD children. Send us photographs of the event or sponsored event that you want to do.

We are also very happy to help supply ROHHAD information and merchandise to help you raise more funds at your event.If you are doing a sponsored event we can supply you with sponsorship forms and offer you ROHHAD awareness T-shirts at cost price.

You may come up with a unique and brilliant fundraising idea different to our suggestions and we can’t wait to hear all about it.

Helping in any way you can will bring us one step closer to finding a cure for our amazing ROHHAD children. To everyone who fundraises for ROHHAD association, thank             you for your time and efforts. Be proud of yourself for you are helping and bringing the ROHHAD association and its researchers one step closer to finding a cure.

            ‘Picnic in the Park’ for the ROHHAD Association. This will be our first big event                         of the year and we are hopeful that it will become our flagship annual day.

‘Picnic in the Park’ is a fun family day out in Moss ‘O Balloch at Balloch Country Park in scotland. We invite all families to come along and join us for a picnic at the park …lots of fun children’s activities will be happening on the day. We will have music             and entertainment, face painting, magic and tricks, tattoos, childrens characters like Olaf and Elsa, Bouncy Castles, Beat the Goalie, childrens tombola and fun and games. It is shaping up to be a wonderful family fun day out and all we really need is your support and the sun to shine on the day. We will have our own stall full of information and the opportunity to offer financial support by purchasing some ROHHAD association merchandise.

This event will take place on Saturday the 1st of August 2015 from 11am until 4pm             (weather permitting)