Christmas Light Switch On – 2017 Loch Lomond Shores

We are delighted to share with you all that we have been chosen as one of the charities to be collecting this year at Loch Lomond Shores Christmas Light Switch on. The date of the Light Switch on is Sunday the 19th of November. We will be present all day at this incredible event.  We […]

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Posted on 20th June 2017

Happy New Year 2017 ! Bring on the Fundraising and Awareness !

HAPPY HAPPY NEW YEAR TO ALL OF OUR AMAZING SUPPORTERS AND AWESOME ROHHAD FAMILIES. Apologies we have been a little quiet on the website these past few weeks, we were experiencing some server difficulties which look to be fully resolved now !! What a fabulous year 2016 was for raising awareness and much needed funds […]

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Posted on 24th January 2017


We are delighted to share with all our amazing supporters wonderful news.  The team behind Marvel Universe LIVE! have been in touch with Aaron Hunters family and they have shown an incredible amount of support for him, his awareness campaign and the children battling ROHHAD.  4 of the actors who play the superheroes in the […]

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Posted on 14th October 2016