ROHHADAvenger

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Our very own Hero “AaronMan” Wins Pride of Britain Award 2019

We are thrilled and so incredibly proud to share with you all that our very own selfless, brave, and inspiring superhero AaronMan has won the Good Morning Britain Young Fundraiser Of The Year Award; at this years Pride of Britain Awards.

Pride Of Britain Award - Aaron Hunter with his family mum Lisa, sister Lauren with Ben Shepherd, Susanna Reid, and Cheryl. 28.10.2019 Picture by Tim Merry©

We will be updating our website and social media pages over this weekend and into next week with a full reaction from Aaron, on how he feels about winning the award, his hopes for ROHHAD research and how the night went.

Aaron has asked us to share a few words with you all that he wanted to say at the awards, however due to severe social anxiety and how debilitating ROHHAD is, he was unable to say all that he wanted too. He did manage to collect the award and dedicate his award to all of his special friends with ROHHAD and for him that was the most important thing, he was determined to do this despite how poorly his ROHHAD makes him feel.

He also wants you all to know he had an incredible time, really enjoyed the night and that he was so well cared for and looked after by all of the team at Pride of Britain. He said to say you need to watch the show to see why the night and all the other winners were incredible!

AaronMan’s words

“ Thank you so much to Pride of Britain and to everybody who voted for me to win this Award. I would like to accept the award and dedicate it too all of the ROHHAD Children. This is for you! Your my reason for wanting to find a cure I know how hard and painful this is and I want to help make you better.

Thank you so much to IronMan and to everyone who did my muddy puddle challenge and to all the people who support the ROHHAD Association charity. It’s because of you that we can begin Medical Research now.

I know we need to raise a lot more money if we are going to find a cure and I promise I will try my best to keep fighting and raising funds I’ll keep thinking of ideas to help.

If anyone here wants to help you can still do my #GoMadJumpForROHHAD “ muddy puddle” challenge it’s not too late. Plus there’s plenty of rain just now so lots of muddy puddles !!”

Aaron Hunter (9 years Old)
Pride Of Britain Award Winner 2019
“Good Morning Britain’s Young Fundraiser of The Year”
#ROHHADAvenger
#Superhero

To See Cheryl Present Aaron Hunter with his Pride of Britain Award in a Daily Mirror Exclusive Click Here

Pride of Britain Awards 2019 - Cheryl with Aaron Hunter winner of Young Fundraiser award. 28.10.2019 Picture by Tim Merry©

Aaron Hunter (with mum Lisa) receives Pride Of Britain 2019 Good Morning Britain Young Fundraiser award from Cheryl Cole, Ben Shepherd, Susanna Reid

Aaron Hunter (with mum Lisa) receives Pride Of Britain 2019 Good Morning Britain Young Fundraiser award from Cheryl Cole, Ben Shepherd, Susanna Reid

Good Morning Britain fundraiser winner Aaron Hunter received his award from Cheryl Cole, Ben Sheperd and Susana Reid at the 20th Pride of Britain 2019
Picture Andy Stenning


The Pride of Britain Awards will be aired on ITV on the 5th of November 2019 at 8pm, please watch to see Aaron collect his Award and also to see the other inspiring and incredible winners on the night.

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New Charity Merchandise Just Been Added! Check It Out

Hop On Over to Our Merchandise Page to order Some New goodies that will help fund Important Medical Research into finding a cure for the ROHHAD Children

 

Welcome to our NEW Charity Merchandise Page We currently have T-shirts, Wristbands and Baseball Caps available for sale. Coming Soon we will have a few new designs in our T. Shirt Range as well as Charity Coffee/Tea Mugs and Keyrings for Sale.

To place an order please click the link to email our charity office and they will help you order.

[email protected]

New Merchandise

New Charity Wristbands in our bright logo colours of Orange and Green as well has having our logo on them they say 'Team ROHHAD Avengers' and also our hashtag #GoMadForROHHAD

Wristbands begin at £1 or $1.50 for a child size and £2 or $3 for an Adult size. Price may vary depending on size of order. If ordering in bulk ask us about our discounted price.

New Charity Baseball Caps You can choose to have it say #GoMadForROHHAD or ROHHAD Avengers - Cost of Baseball Cap is £10.00 or $14.00


Adult T-shirt with printed design front and back £14.00 or $18.00 plus postage, Watch out for New Designs coming soon

ROHHADT  ROHHADT2


Adult T-shirt with printed design front only £12.00 or $14.00 plus postage

ROHHADT


Adult sizes: Small, Medium, Large, X Large, XX Large and XXX Large

Childrens T-shirt with printed design front only £10.00 or $13.00 plus postage

ROHHADT

Childrens sizes: 5-6, 7-8, 9-11 and 12-13 years

Wristbands - our old stock is now reduced they are black with green print plus postage, only 50p plus Postage

ROHHADwband

ROHHADwristband2

UK and International Postage charges vary depending on weight of item so please email us at the charity to be given a full quote including postage and packaging for your order

To order email us now

[email protected]

 

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