Exciting Times Ahead – Check Out Our Amazing Fundraising Events for 2018

Please check our event’s page out for all details of our current and up to date events as well as planned fundraising activities.   This year we have

ZERO TO HERO – global virtual sporting event during May 2018

What is the ZERO TO HERO Challenge 

The ZERO TO HERO Challenge allows you to complete your chosen distance by doing a sporting activity(s) of your choice. You complete the challenge during superhero month and become a ROHHAD Avenger!

This challenge is inclusive of all ages and abilities worldwide and regardless of whether you are a trained athlete or have limited mobility, this is the sporting charity event for YOU!

 Annual Hollywood Charity Ball in Alea Casino –  2nd June 2018

Join us for a spectacular evening hosted by the amazing comedy duo Jane McCarry and Mark Cox; as you party the night away like they do in HOLLYWOOD! 

Our Annual Charity Ball will be held in the stunning Ballroom at the Alea Casino in Glasgow on Saturday the 2nd of June 2018.

Your evening will begin with a walk down our red carpet and you will be greeted by our stunning showgirls and shown to the champagne reception, setting the tone for the fabulous evening that we have planned for you.

With delicious food freshly prepared for you; an evening of Incredible entertainment, Live Music, Comedy, Grand Auction, Incredible Prizes to be Won, fundraising, Fun, Dancing, Laughter and so much more will unfold.  Thanks to the award winning photographers at TCB Photography you can be photographed like the A Lister you come dressed as ! with our dress code being Glitz and Glam we know that is one Picture you will treasure.

With Hosts Jane and Mark or should we say Still Games Tam and Isa! Hosting the evening we know you will enjoy every second and you won’t want it to end.

New – Golf Charity Benefit at Cowglen Golf Club – 31st August 2018

More details about this incredible Golf fundraiser we are planning for you will follow soon ! If Golf is your passion email the charity today and will be in touch soon.  We can tell you that this is a team event and there will be lots of incredible prizes to be won on the day.  The course is the stunning Cowglen Golf Club in Glasgow.

Murder Mystery Night – Autumn (date and venue tbc)

Being organised by our Awesome Charity Ambassador Actor Lee Samuel.  We will be sharing details of this evening of mystery with you all very soon..... watch this space and if you think this is a night you would enjoy please email us and we will forward the details to you when we announce them !

Annual Psychic Night – Summer 2018 (Date tbc Denny Civic Theatre)

We are busy organising our annual psychic night and we hope to share details with you all very soon.  This is always a popular event so keep watching our facebook and twitter pages for details and tickets all coming soon.

Annual Halloween Family Fun Night (Date and venue tbc)

We are busy organising our annual family halloween night and we hope to share details with you all very soon.  This is always a popular event so keep watching our facebook and twitter pages for details and tickets all coming soon.

Keep following us on twitter @ROHHAD_GLOBAL and facebook @RohhadAssociation for all details on our upcoming events as we share them.  If you want to get involved and help or would like to attend any event mentioned above you can contact us at the charity via email [email protected]



Christmas Light Switch On – 2017 Loch Lomond Shores

christmas 2017

We are delighted to share with you all that we have been chosen as one of the charities to be collecting this year at Loch Lomond Shores Christmas Light Switch on.

The date of the Light Switch on is Sunday the 19th of November.

We will be present all day at this incredible event.  We will be sharing full details soon about what to expect at this incredible event and how our charity will be participating in that.

We cannot wait to spend the day at Loch Lomond Shores when they switch the Christmas Lights On.  It is always a magical fun filled day that all the family can enjoy................. more details to follow soon

loch lomond shores 4

lomond shores 3

lomond shores 2



Balloch Co-op Bag Packing BIG SUCCESS

We would like to say a huge THANK YOU to all of our amazing Volunteers, the adults and children who helped pack many bags ! on Saturday the 1st of October.  We also wish to thank everyone who donated on the day and allowed our volunteers to pack you bags ! The total amount raised at the CO-OP Bagpacking fundraiser was £769.56 .  It was a great day and we are truly grateful to all of you for helping us to raise awareness and much needed funds for ROHHAD Research.  Our next one is the 29th of December at Morrisons in Dunbarton hope to see you all there !! Here are some snaps of the day -


kids-bp-2016 ian-louise-bp-2016 dave-aaron-bp-2016 louise-kids-bp-2016 ian stephen

This Campaign has ended. No more pledges can be made.