Meet Chance One of Our Inspiring ROHHAD Warriors- blog written by his mum Amy this is his Rare Reality

Meet Chance one of our Inspiring ROHHAD Warriors this blog was written by his mum Amy to help raise awareness for Rare Disease Day 2019 – This is Chances #RareReality “In September of 2003 my life changed drastically. I gave birth to a miracle! Chance was born with several rare disorders including Septo Optic Dysplasia, […]

Continue Reading....
Posted on 26th February 2019

Marstons ‘Walk The High Road’ Huge Success

All of the Team at the ROHHAD Association would like to say A HUGE THANK YOU to all those from Marstons who ‘Walked The High Road for ROHHAD’ On Wednesday the 28th of September.  As expected the weather was miserable, it rained all day and the team were soaked to the skin !!  However they […]

Continue Reading....
Posted on 29th September 2016

ROHHAD Association Avengers – Glasgow Kiltwalk – Amazing Effort by the Team

The Glasgow Kiltwalk 2016 seen a team of over 30 walkers participating in aid of the ROHHAD Association this year.  It was a wonderful event full of laughter, fun, sweat, determination, tears and blisters !!.  Massive Thank You to all of the team and all of those who walked in aid of our charity.  We […]

Continue Reading....
Posted on 7th May 2016