Open Letter from our CEO Elisabeth with an important Research Update

An Open Letter from our CEO and Co-Founder with an Update on ROHHAD Research Good Evening ROHHAD Avengers! We are excited to announce that the process of awarding funding for ROHHAD research in 2019/2020 is almost complete. The charity received four proposals in total from four different teams of researchers across the globe and all […]

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Posted on 26th June 2019

Robert Downey Jr has Gone Mad For ROHHAD !! Aarons Wish is unfolding !

GOMADJUMPFORROHHAD The “Muddy Puddle” challenge has been issued… Film yourself jumping in the biggest, muddiest puddle possible (keep it fun and safe) for 33 seconds…Then challenge 3 people to do the same…Please post the challenge to your social media platform and tag #GOMADJUMPFORROHHAD… No puddle no problem …Follow the same rules minus the puddle…Remember have […]

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Posted on 28th March 2018

We had a Jumping Good Time In Edinburgh !!

The amazing charity When You Wish Upon A Star went the extra mile to help make Aaron Hunters wish to raise awareness of his rare life threatening disease come true.  We had the most amazing time at their Ceilidh in the Park event, during this years Fringe Festival in Edinburgh. Our Awesome friend and amazing […]

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Posted on 16th August 2017