ROHHAD Research, child and family participants required urgently

Good evening everyone, we will over the next few days be emailing the families who have agreed for us to contact them regarding medical research however time is vital for this particular research project as the time line has been altered by those funding the exome sequencing and samples are now required sooner. Therefore we […]

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Posted on 10th July 2019

Open Letter from our CEO Elisabeth with an important Research Update

An Open Letter from our CEO and Co-Founder with an Update on ROHHAD Research Good Evening ROHHAD Avengers! We are excited to announce that the process of awarding funding for ROHHAD research in 2019/2020 is almost complete. The charity received four proposals in total from four different teams of researchers across the globe and all […]

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Posted on 26th June 2019

Delighted to introduce our New Trustee Stephen Whyte

The Team at ROHHAD Association would like to give a huge warm welcome to our new Trustee Stephen Whyte. Stephen is very passionate about the ROHHAD Association and has been helping the charity consistently from our very first fundraiser almost 2 years ago until now. Stephen has vast experience in fundraising and has organised events […]

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Posted on 24th October 2017