ROHHAD Research, child and family participants required urgently

Good evening everyone, we will over the next few days be emailing the families who have agreed for us to contact them regarding medical research however time is vital for this particular research project as the time line has been altered by those funding the exome sequencing and samples are now required sooner. Therefore we […]

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Posted on 10th July 2019

Open Letter from our CEO Elisabeth with an important Research Update

An Open Letter from our CEO and Co-Founder with an Update on ROHHAD Research Good Evening ROHHAD Avengers! We are excited to announce that the process of awarding funding for ROHHAD research in 2019/2020 is almost complete. The charity received four proposals in total from four different teams of researchers across the globe and all […]

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Posted on 26th June 2019

ROHHAD Association Research Grants 2019 to 2020

 We are delighted to officially announce that the ROHHAD Association is now OPEN to proposals for funding for Medical Research into ROHHAD Syndrome. The available funding for 2019/2020 research grants is a staggering £275,000.00 which would not have been possible without the help of all of our incredible supporters, our inspiring children their families […]

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Posted on 21st November 2018