Fundraising Archives - Page 4 of 7 - ROHHAD Association

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Marvel Universe LIVE! #GOMADJUMPFORROHHAD

We are delighted to share with all our amazing supporters wonderful news.  The team behind Marvel Universe LIVE! have been in touch with Aaron Hunters family and they have shown an incredible amount of support for him, his awareness campaign and the children battling ROHHAD.  4 of the actors who play the superheroes in the LIVE! show have completed the #GOMADJUMPFORROHHAD challenge and Aaron was so happy watching the video; he thanks them for completing the challenge for all the ROHHAD kids.  Please click the link below to the Daily Record Article to see the challenge video and Aaron’s response to it.

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They have also invited Aaron along to the LIVE! show when it comes to the SSE Hydro in Glasgow in January 2017.  Aaron will have the opportunity to meet some of the heroes and watch the incredible Marvel Universe LIVE! show.  As you can imagine he is already counting the sleeps.  To help Aaron in his mission to raise awareness and much needed funds for medical research they have donated an incredible 10 Family VIP tickets for the LIVE! show when it is in Glasgow; to the ROHHAD Association.  They will be raffled off to help raise funds for medical research into ROHHAD.

To be in with a chance of winning 1 of the family VIP tickets (family of 4) to see Marvel Universe LIVE! in Glasgow in January 2017 all you have to do is enter the Raffle.  Tickets cost £5.00 and you can enter via this just giving campaign page

https://www.justgiving.com/campaigns/charity/rohhad/aaronsmarvelloussuperheroesraffle

Please remember to leave your contact details on the Just Giving page and do not click anonymous donation as we will not be able to process your entry without your name and email or contact number.

All of the team at the ROHHAD Association are so grateful to Claire and her team at Marvel Universe LIVE! for the support they have shown to Aaron and the children around the globe battling ROHHAD.  Aaron has been incredibly happy since seeing this video and he reckons his special friends around the world will be too.  He has even asked if this means that the real Iron Man (Robert Downey Jnr) will do the challenge now !! we can but hope ! Whatever happens though Aaron is on top of the world just now with the support he has had from Marvel Universe LIVE! and is counting the sleeps until January!!

If you want to help then you too can #GOMADJUMPFORROHHAD and text ‘Jump29 £3.00’ to 70070 or you can enter the Marvel Universe LIVE! raffle.  You can also contact Lisa on 07917225276 to purchase Raffle tickets or Louise on 07881100083.

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Balloch Co-op Bag Packing BIG SUCCESS

We would like to say a huge THANK YOU to all of our amazing Volunteers, the adults and children who helped pack many bags ! on Saturday the 1st of October.  We also wish to thank everyone who donated on the day and allowed our volunteers to pack you bags ! The total amount raised at the CO-OP Bagpacking fundraiser was £769.56 .  It was a great day and we are truly grateful to all of you for helping us to raise awareness and much needed funds for ROHHAD Research.  Our next one is the 29th of December at Morrisons in Dunbarton hope to see you all there !! Here are some snaps of the day –

 

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Marstons ‘Walk The High Road’ Huge Success

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All of the Team at the ROHHAD Association would like to say A HUGE THANK YOU to all those from Marstons who ‘Walked The High Road for ROHHAD’ On Wednesday the 28th of September.  As expected the weather was miserable, it rained all day and the team were soaked to the skin !!  However they did not let it dampen their spirits and everyone of them completed the 16 mile Hike from Balloch to Luss and Back again.  The team had members from all over Scotland and the North of England.  Aaron was there to cheer them on as they finished and he presented them with a medal; he wanted to say thank you for helping him and his special friends around the world fighting ROHHAD.

After completing all those miles, the team stayed on for The Queen Of The Loch Quiz night.  It was a lot of fun and many of our local supporters came along as well as some special friends from America, Sedona’s Mum and Dad were on vacation in Scotland; so the Team at Marstons were able to meet 2 families affected by the cruel disease ROHHAD.

It is never too late to sponsor the team !! please donate via this link

https://www.justgiving.com/fundraising/QueenoftheLochforROHHAD

Marstons have many more events coming up in the month of October so please check out your local one and see what they have planned.  The Queen Of The Loch are hosting a Family Fun Day this Saturday (1st of October 2016) and we will be there with our face paints and glitter tattoos.

We are deeply grateful to all the Team at Marstons who are helping our charity and we are also grateful that they want to continue to do so.  Once we know how much has been raised from all the events we will update you; for now though here are some of the fabulous photos from yesterday.

 

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