Excited to announce our 1st Charity Ambassador ‘Lee Samuel’

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All at the ROHHAD Association are very excited to welcome to the team; the very talented Mr Lee Samuel.

Lee is an Actor, Presenter, Drama Teacher and BIG Panto Star in Scotland, he is also a very close friend to the Hunter Family and has seen for himself the devastation that ROHHAD has caused to his 'wee pal Aaron' and his family.

Lee has been a huge supporter of the ROHHAD Charity since it was founded in May last year, helping out at our events and to raise awareness.  When Trustees were discussing who we could ask to be Ambassadors for the charity Lee was the first to spring to mind.  We asked him and he said YES !

We are all delighted he is part of our Team as we know he will bring so many positives to our charity.  His enthusiasm is fabulous, he is driven, hard working and compassionate all of which we welcome in our team.

Thanks Lee for all your support so far; we are looking forward to continuing our work with you in your role as Ambassador.

Lee will be presenting at the ROHHAD Masquerade Ball on Friday the 1st of April.

He recently did his #GOMADJumpForROHHAD challenge that can be seen on FB, here is a few snaps of Lee doing the challenge and of Lee with Aaron.

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GOMADJumpForROHHAD Challenge

Aaron Hunters Social Media Video has had 90 thousand views on FB and 1350 views on youtube and has been online for 2 weeks !.  Raising Awareness is key for those battling ROHHAD.  We hope that the public keep viewing Aaron's Video.

The mission at ROHHAD Association is Global Awareness and also Fundraising to help Medical Research into ROHHAD.  Without Research we will not find a cure.  If you have watched Aaron's video and would like to do the challenge then please do so and post your video online #GOMADJumpForROHHAD.  Donating is easy too simply text JUMP29 £3.00 to 70070 (UK) or click on our donate now button on the website.

All support is appreciated.

Warm welcome to our new Trustee Louise !

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The team at the ROHHAD Association would like to give a huge warm welcome to our new Trustee Louise Wilson.

Louise is very passionate about the ROHHAD Association and has been helping the charity throughout the past 6 months.

Louise has vast experience in fundraising and has organised many events in the past for various charities.  Mum to 3 beautiful girls and wife to Dean; Louise spends her time caring for her family and also volunteering for charities.

Her dedication and passion to our charity mission has been very apparent these past 6 months and it felt only natural that she would progress into the role of Trustee.

So welcome aboard Team GOMADForROHHAD Louise ! We thank you for all your hard work so far in volunteering and we look forward to working with you as Trustee.

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