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Ladies Night – 1st March 2019



Calling all Ladies to Join us for a night with Incredible Views all around !! !

Our fabulous Ladies Night is taking place on Friday the 1st of March 2019 and our venue is The Shore in Loch Lomond with picturesque views, exquisite food and more.

Treat yourself to a night of fun pleasure glitz and glam ! We promise that this will be one night that you will not want to end!

Tickets cost £35 per Lady and your evening includes

-Strip Show by the Sassy Boys
-Disco and Party with the fabulous Stephen Dunn from Gracious Party’s
– A little pain for your pleasure ! as some Spunky Male Volunteers will be doing the #GoMADWAXForROHHAD Challenge
-Buff Buttlers ready to serve your drinks
– Exquisite delicious food prepared by one is Scotlands top Chefs, we have tasted this food and believe us you won’t be disappointed!
– Raffle with Incredible Prizes
– Raffle to Win Private Lap Dances on the Night
– Covered Terrace view overlooking the picturesque Loch Lomond.

And more…….

We have had a lot of interest in this night and tickets are now available to book but hurry we do not want you missing out ! Click the link to Try Booking to book online

Or Alternatively call Lisa on 07917225276 if you prefer to collect tickets from the charity office and pay cash.

Due to Adult entertainment this evening is strictly over 18. By purchasing a ticket you are confirming that you are an adult over the age of 18

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ROHHAD Association Research Grants 2019 to 2020



We are delighted to officially announce that the ROHHAD Association is now OPEN to proposals for funding for Medical Research into ROHHAD Syndrome.

The available funding for 2019/2020 research grants is a staggering £275,000.00 which would not have been possible without the help of all of our incredible supporters, our inspiring children their families and their friends. Each and everyone of you have contributed and we couldn’t have done it without you.

We want to say a MASSIVE THANK YOU to you all and also to our charities special friend Robert Downey Jr and all of his amazing fans the ducklings whom helped us immensely with raising awareness, funds and the #GoMadForROHHAD campaign. Fulfilling Aaron Hunters Wish to help raise awareness and funds to #FindACure for his friends all around the world battling the Evil ROHHAD

Applications for funding closes on the 1st of February 2019 and we hope to be supporting ROHHAD Research Financially by April 2019. We will keep you all updated on the progress of ROHHAD Research as this moves forward.

Please click the link to view our charities Research Strategy and also the criteria for this coming years funding proposals. The Strategy and ROHHAD Research Priorities were created in consultation with the families affected by ROHHAD Syndrome.

ROHHAD Association Research Strategy

We hope that we can rely on your support now and in the future to ensure that one day we do indeed Find A Cure!

First Edition of the ROHHAD Reader

The ROHHAD Reader was written and published by Casey Rand, Emma Dunne and their colleagues in clinical research at the Center for Autonomic Medicine in Pediatrics (CAMP) Ann & Robert H. Lurie Children’s Hospital of Chicago and we want to say a special thank you to them for taking the time and putting so much effort into this first edition(yes more will follow!)

They could not have put this together without the help of all 3 rohhad charities, ROHHAD Fight Inc, ROHHAD Association Belgium and our own ROHHAD Association.

However it is our awesome families who shared their photographs and experience with ROHHAD that has made this issue very special and an incredible read so an extra special thank you to all of you who got involved.

We hope you enjoy it as much as we have here at the charity.

One last Huge thanks to all of the doctors, junior doctors and scientists that are involved in ROHHAD Research already and whom are keen to carry on researching and help us to understand this disease better hopefully one day leading to a cure. The ROHHAD Reader introduces you to the teams who are doing research currently and who will be doing more as time goes on.

As you will see we have doctors in various places across the world who are working hard to try and help our children.

As a charity and as families affected hopefully we can all continue to work hard together to raise funds and awareness of ROHHAD so that we can help fund this vital research. If you would like to help please visit our donation page or get in touch to find out more about support you can give.

Click here to read the Rohhad Reader

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