Our Blog / Latest Updates

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ROHHAD Charity Office Appeal – DIY SOS

The ROHHAD Association is a charity that has been set up to help raise awareness and funds to find a cure for the rare life threatening and terminal disease ROHHAD that affects less than 100 children worldwide.

As our charity grows we are now badly in need of our own office and storage space.  We currently run office duties from the Hunter Family Home however recently we have outgrown this and in order for our charity to move forward and continue to grow; it really needs its own office.

The Hunter family have now donated a garage building on their land that we can renovate and transform into the ROHHAD Association Head Office.  The electricity costs of running the office building will be donated to the charity by the Hunter Family for a minimum of 3 years.  Therefore costing the charity less money in the long run to operate from the building than to rent an office space local to the charity.

The estimate to renovate the building and turn it into an office is just over £6000.00 however thanks to a local building company, those costs have been reduced considerably.

Ricky Murdoch from Murdoch Properties Ltd has kindly donated some materials, as well as his own Labour to help.

However we do still have to find £3000.00.   This will cover the cost of some materials we need to purchase, further labour costs,  computing equipment, storage and office equipment for the Office.

Can you please help by making a donation today ? THANKS

To donate click our donate now button and choose justgiving or paypal please type reference - OfficeDIYSOS when processing your donation.  You can also text a donation by writing 'ROHH01 £5.00' to 70070.  You can donate any amount just change the £5 to whatever you wish to donate.

Perhaps you can help in other ways  by donating computing equipment ? materials etc please call the office number on 01389 753900 or email at [email protected] if you think you can help.

All funds raised via this campaign will be used to pay expenses relating to the charity office building renovation and office equipment.  Should there be any surplus funds upon completion of works those funds will be transferred automatically to the ROHHAD Association main bank account and used to fund research into the rare life threatening disease ROHHAD.  we need your help

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Psychic Night – Evening of Mediumship 3rd of August 2013

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Barry Hogg, Ricky Martin, Alan Welsh and Joanne Davies.  If Psychics and mediums interest you this is one night you do not want to miss.

Tickets cost £10.00 per person and include 3 hours worth of Mediumship and Psychic demonstrations.  Tickets are already selling for this event and are available to purchase now.  Call today to make sure you have yours.

Doors open at 6.30pm and the evening begins 7pm sharp, the evening will finish at 10.30pm.

Private Readings are available on the night at an additional cost of £15.00 per person for a 15 minute reading. These are limited and will be booked on a first come first serve basis.  Readings can be booked in advance.

Refreshments of Tea, Coffee, Water, Juice and Home Baking will be available for a small additional cost before the evening begins and during the interval from 8.30pm until 9pm.

There will also be a raffle held on the night with some fantastic prizes donated by local businesses to be won.

Contact Lisa on 07917225276 or Louise on 07881100083 to buy your tickets.

You can pay for them online and they will be available to collect on the night or pay in cash and collect from the charity office in advance.

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Christmas Light Switch On – 2017 Loch Lomond Shores

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We are delighted to share with you all that we have been chosen as one of the charities to be collecting this year at Loch Lomond Shores Christmas Light Switch on.

The date of the Light Switch on is Sunday the 19th of November.

We will be present all day at this incredible event.  We will be sharing full details soon about what to expect at this incredible event and how our charity will be participating in that.

We cannot wait to spend the day at Loch Lomond Shores when they switch the Christmas Lights On.  It is always a magical fun filled day that all the family can enjoy................. more details to follow soon

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