Angel Emilee’s Story (written by her dad Charlie)

  It is time for me to talk a little more about my beautiful daughter Emilee, and what we as a family have gone through. In my last blog I finished by sharing that Emilee had taken some tests for gifted children, I shared that she had just missed out on passing those tests fully […]

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Posted on 28th February 2016

Excited to announce our 1st Charity Ambassador ‘Lee Samuel’

All at the ROHHAD Association are very excited to welcome to the team; the very talented Mr Lee Samuel. Lee is an Actor, Presenter, Drama Teacher and BIG Panto Star in Scotland, he is also a very close friend to the Hunter Family and has seen for himself the devastation that ROHHAD has caused to […]

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Posted on 22nd February 2016

Reagann’s Blog (written by her mum BJ)

  I will start my first blog off saying how heartbroken our family was to hear of the tragic loss of a young lady at the age of 22 who lost her battle with ROHHAD this week, Sarah Blake. I had never spoken to her or her family, although I wish I had. She was […]

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Posted on 19th February 2016