Jaxon’s Blog (written by his mum Shanel)

  Since Jaxon’s birthday things have been very busy. We’ve had several adjustments in meds and with the ventilator. Jaxon has started cortisol supplement when he is sick or his body is under stress. His ventilator pressure has been increasing. There are times even with the increases that Jaxon is having sever obstruction and his […]

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Posted on 19th February 2016

Jaxon’s Blog

Meet Jaxon¬† Jaxon is 5yrs old and lives in Canada with his mum and big sister. He is a massive Superhero fan ! The photo above was taken last week on his 5th birthday. ¬†Jaxon has been diagnosed with ROHHAD and his mum Shanel will blog on the website from time to time to allow […]

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Posted on 28th January 2016