Meet Joshua he is 19 years old and one of our oldest living children diagnosed with ROHHAD. Luckily, he is doing quite well. He is a senior in high school and works a part time job as part of a school vocational program. He does have specially trained nurses with him most of the time.
Joshua has been raising awareness in his hometown and across America for many years. He featured in a documentary a few years ago now called "Life or Death Battling to Breathe" : you can watch a film of it on YouTube the link is - http://youtu.be/2WHsdZAIM6Y
Joshua's mum will be blogging regularly on here to share with you all Joshua's battle with ROHHAD.
Joshua fills a lot of the ROHHAD families with hope he is an inspirational young man and the ROHHAD Association are so happy he and his mum have agreed to share with you all his story. Stay tuned for more blogs from Joshua.