Joshua’s Blog

Blog – nursing Earlier this week, I was the nurse on duty with my son for the 3rd night in a row.¬† I am tired from working my full time job,¬† trying to take care of normal household chores and from helping out at our local food bank (my husband and I joined several of […]

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Posted on 9th February 2016

Joshua’s Blog

Meet Joshua he is 19 years old and one of our oldest living children diagnosed with ROHHAD. ¬†Luckily, he is doing quite well. He is a senior in high school and works a part time job as part of a school vocational program. He does have specially trained nurses with him most of the time. […]

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Posted on 30th January 2016