Captain Braveheart Aaron’s Blog – Rare Disease Awareness Day 2017

  They say a picture tells a thousand words, so in this special Rare Disease Awareness Day blog I will share with you lots of photographs. ¬†We will use these photos to show you how the orphan disease ROHHAD has completely changed my sons physical body; how it has left him with a lifespan unlikely […]

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Posted on 1st March 2017