Raising Awareness with Clyde1 Fm radio

Massive thank you to Clyde 1 Fm Radio for helping the ROHHAD Association raise awareness. Awareness and fundraising are vital to help UK research into ROHHAD begin. We need to find a cure and help improve the lives of the amazing children affected by ROHHAD. Because the children are so rare governments won’t fund medical […]

Continue Reading....
Posted on 29th September 2015

Raising Awareness is Vital – Recent Article in Daily Record

We wish to thank the Daily Record and in Particular Amanda Keenan and Samuel Bell for helping us raise awareness of ROHHAD. The Daily Record has shared Aaron’s story via the article below. Please read the full article. The headline highlights Hyperphagia, a symptom of ROHHAD that means the children never feel full and would […]

Continue Reading....
Posted on 16th September 2015

Some Photos from our Recent Event ‘Picnic in the Park’

Hi we thought we would share with you all a video of photos from ‘Picnic in the Park’. Thank you to Gerry McGrane for photographing the event and making the video. We all had a brilliant day and appreciate the support received at the event.    

Continue Reading....
Posted on 16th September 2015