Superhero helping The real Superheroes !

Massive thank you to Robert Downey Jnr AKA IronMan for making my sons day and putting a huge smile on his face. Sending him a special photograph of Ironman telling Aaron he is Ironman ! Aaron was so happy receiving this special gift in the post as he is a massive Avengers fan he said […]

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Posted on 21st August 2015

Children helping Children

Our super brave ROHHAD children who battle daily to survive have a group of new ROHHAD heroes helping them. Lauren Hunter (Aaron’s big sister), has co-written a beautiful song for the ROHHAD children and she invited her friends from Singer Station School to help her perform the song. Lauren and the singer station children hope […]

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Posted on 20th August 2015

Meet the ROHHAD ‘Superheroes’

Everyone of these beautiful children are our inspiration – some of them are angels watching over the other children now and some of them continue to fight daily against the Evil ‘ROHHAD’ Watch our video of the amazing children see who we are fighting hard for and then become a ‘ROHHAD Hero’ and donate today […]

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Posted on 19th August 2015