ROHHAD Association Research Grants 2019 to 2020

 We are delighted to officially announce that the ROHHAD Association is now OPEN to proposals for funding for Medical Research into ROHHAD Syndrome. The available funding for 2019/2020 research grants is a staggering £275,000.00 which would not have been possible without the help of all of our incredible supporters, our inspiring children their families […]

Continue Reading....
Posted on 21st November 2018

First Edition of the ROHHAD Reader

The ROHHAD Reader was written and published by Casey Rand, Emma Dunne and their colleagues in clinical research at the Center for Autonomic Medicine in Pediatrics (CAMP) Ann & Robert H. Lurie Children’s Hospital of Chicago and we want to say a special thank you to them for taking the time and putting so much […]

Continue Reading....
Posted on 17th October 2018

Robert Downey Jr has Gone Mad For ROHHAD !! Aarons Wish is unfolding !

GOMADJUMPFORROHHAD The “Muddy Puddle” challenge has been issued… Film yourself jumping in the biggest, muddiest puddle possible (keep it fun and safe) for 33 seconds…Then challenge 3 people to do the same…Please post the challenge to your social media platform and tag #GOMADJUMPFORROHHAD… No puddle no problem …Follow the same rules minus the puddle…Remember have […]

Continue Reading....
Posted on 28th March 2018