ROHHAD ANGEL SEDONA MARIE - ROHHAD Association

Sedona was so full of life. Nothing got her down. She was an amazing, funny, loving daughter and even though Rohhad took her life too soon, she touched so many lives. She was my Hero. She took each day with Grace and Dignity and she loved all the little things that we miss because we are so busy. She was amazing and such an ambassador for her disorder and her family. We would not change anything about her. Sedona passed away on March 13, 2015 at age 18.

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Auntie to a very special ROHHAD Boy.

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