To donate to the “muddy puddle” Go Mad Jump For ROHHAD challenge click here

 

“Robert Downey Jr has Gone Mad For ROHHAD! This is his Muddy Puddle Challenge!”

To donate to the “muddy puddle” Go Mad Jump For ROHHAD challenge click here

 

To Find out Why Robert Downey Jr is helping Aaron and our charity view this video
 

 

ZERO TO HERO – Sign Up Here

 

 

“Light The World For You” by Lauren Hunter
Aaron’s #GOMADJumpForROHHAD Video
Our Heroes


MOST RECENT UPDATES

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Addison’s Blog – Her Rare Reality Written by mum Angela for Rare Disease Awareness Day 2019

  • On: 19th February 2019
  • By: Lisa Hunter

Addison before ROHHAD Above My Miracle baby Addison was born in Decemb ...

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Banner’s Blog written by his mama for Rare Disease Awareness Day 2019 this is his Rare Reality

  • On: 18th February 2019
  • By: Lisa Hunter

Meet Banner Mazza Sears, born February 7th, 2015. 38 weeks, 6 pound 14 ...

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Seohyun Blog Written for Rare Disease Awareness Day 2019 Rare Reality

  • On: 17th February 2019
  • By: Lisa Hunter

Seohyun above before ROHHAD Syndrome Let me introduce my beloved daugh ...

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Leah Baldock ROHHAD Blog written for Rare Disease Day 2019

  • On: 15th February 2019
  • By: Lisa Hunter

Leah Baldock pictured above before ROHHAD Leah was born in June 2009 a ...

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