To donate to the “muddy puddle” Go Mad Jump For ROHHAD challenge click here

 

“Robert Downey Jr has Gone Mad For ROHHAD! This is his Muddy Puddle Challenge!”

To donate to the “muddy puddle” Go Mad Jump For ROHHAD challenge click here

 

To Find out Why Robert Downey Jr is helping Aaron and our charity view this video
 

 

ZERO TO HERO – Sign Up Here

 

 

“Light The World For You” by Lauren Hunter
Aaron’s #GOMADJumpForROHHAD Video
Our Heroes


MOST RECENT UPDATES

0

Seohyun Blog Written for Rare Disease Awareness Day 2019 Rare Reality

  • On: 17th February 2019
  • By: Lisa Hunter

Seohyun above before ROHHAD Syndrome Let me introduce my beloved daugh ...

0

Leah Baldock ROHHAD Blog written for Rare Disease Day 2019

  • On: 15th February 2019
  • By: Lisa Hunter

Leah Baldock pictured above before ROHHAD Leah was born in June 2009 a ...

3

Blog by Chasity Jacobs ROHHAD Awareness 2019

  • On: 14th February 2019
  • By: Lisa Hunter

Alayna Leigh Jacobs (Lani, 6) of Ripley (above before ROHHAD), Tenness ...

0

Ladies Night – 1st March 2019

  • On: 21st November 2018
  • By: Lisa Hunter

 Calling all Ladies to Join us for a night with Incredible Views al ...

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