How You Can Help - ROHHAD Association

There are lots of amazing and fun ways to raise funds for The ROHHAD Association.

Wether you want to do something inspiring on your own or organise an event, contact us and we will help you in any way we can.

Here are some ideas that you could try:

  • Individual or team sponsored events.
  • Sponsored walk run or cycle ( either on your own with a team or join a large event that allows you to raise funds for different charities.)
  • Sponsored Climb of a mountain like Ben Nevis or Snowdon or even the famous “Three Peaks Challenge.”
  • Sponsored Silence.
  • Sponsored swim.
  • Out of Uniform day.
  • Sponsored Pyjama day.
  • Sponsored Bunjee Jump or Parachute jump.
  • Give up your favourite food for a month like chocolate ! Remember ROHHAD children have very strict diets with no fat and can rarely eat something like chocolate.
  • Cut your hair, sit in a bath of baked beans and so on, the list is endless.
  • Organise a night event or day event for all your friends and family or your local community.
  • Ladies night.
  • Quiz night.
  • Race night.
  • Family fun night or day fayre.
  • Psychic night.
  • Psychic fayre.
  • Local supermarket Bag Packing day.
  • Ask your school to hold a fundraising day .
  • Car boot.
  • Coffee Morning.
  • Bring a pound to work day for ROHHAD association.
  • A night in with friends and donate the money you would have spent on a night out!

Whatever you do decide to do let us know. We would love to hear about how you are going to help the ROHHAD children. Send us photographs of the event or sponsored event that you want to do and we will post it on the website. We are also very happy to help supply ROHHAD information and merchandise to help you raise more funds at your event.  If you are doing a sponsored event we can supply you with sponsorship forms, ROHHAD awareness T-shirts & wristbands just get in touch for prices.

You may come up with a unique and brilliant fundraising idea different to our suggestions and we can’t wait to hear all about it.

Helping in any way you can will bring us one step closer to finding a cure for our amazing ROHHAD children.

To everyone who fundraises for The ROHHAD Association, thank you for your time and efforts. Be proud of yourself for you are helping bring The ROHHAD Association and its researchers one step closer to finding a cure.

Currently, we have 2 support pages:

Adult’s/Parents support Group on Facebook,

Children’s Support Group on Facebook.


Please e-mail us for more details on how to be added.

We are in the process of creating an online forum for both the public and the parents/carers children of ROHHAD.

We are also on Twitter, Where you can tweet your support of The ROHHAD Association




Spread the word

Champion our charity by spreading the word and raising awareness in your local area. You will be our greatest assets by helping to raise the profile of our charity, or even some of our local events.

Ask yourself the following;

  • Do you want to do something a little different to help us raise research funds?
  • Do you share our passion for finding a cure?
  • Do you have spare time and want to help?
  • Do you have a good knowledge of your local community?

If you answered yes to the questions above, and have some time to spare, support us in your area and help raise awareness and funds for The ROHHAD Association.


Research is vital to identify improved treatments, deliver better quality of life and increase understanding of ROHHAD.  It is imperative that research is done if we stand any chance of saving the lives of the children diagnosed. You can Help by making a donation today or helping us raise awareness and funds.

The ROHHAD Association is a global charity and ROHHAD affects children all around the world.  Therefore we are very happy to consider funding applications for research into ROHHAD from anywhere in the world.

There are Endocrine consultants in Scotland and England within the  UK who are very interested in beginning research into ROHHAD.  They are now working collaboratively with one another to prepare research proposals.  There are also Doctors in the USA who are currently undertaking some research into ROHHAD.

At the charity we  will continue to work incredibly hard to raise awareness and the funds required so that we can support and fund research within the UK and Internationally.  Once we begin to allocate ROHHAD Research Grants we will update our supporters regularly via our website on how that research is progressing.

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