How You Can Help

There are lots of amazing and fun ways to raise funds for The ROHHAD Association.

Wether you want to do something inspiring on your own or organise an event, contact us and we will help you in any way we can.


Here are some ideas that you could try:

  • Individual or team sponsored events.
  • Sponsored walk run or cycle ( either on your own with a team or join a large event that allows you to raise funds for different charities.)
  • Sponsored Climb of a mountain like Ben Nevis or Snowdon or even the famous “Three Peaks Challenge.”
  • Sponsored Silence.
  • Sponsored swim.
  • Out of Uniform day.
  • Sponsored Pyjama day.
  • Sponsored Bunjee Jump or Parachute jump.
  • Give up your favourite food for a month like chocolate ! Remember ROHHAD children have very strict diets with no fat and can rarely eat something like chocolate.
  • Cut your hair, sit in a bath of baked beans and so on, the list is endless.
  • Organise a night event or day event for all your friends and family or your local community.
  • Ladies night.
  • Quiz night.
  • Race night.
  • Family fun night or day fayre.
  • Psychic night.
  • Psychic fayre.
  • Local supermarket Bag Packing day.
  • Ask your school to hold a fundraising day .
  • Car boot.
  • Coffee Morning.
  • Bring a pound to work day for ROHHAD association.
  • A night in with friends and donate the money you would have spent on a night out!

Whatever you do decide to do let us know. We would love to hear about how you are going to help the ROHHAD children. Send us photographs of the event or sponsored event that you want to do and we will post it on the website. We are also very happy to help supply ROHHAD information and merchandise to help you raise more funds at your event.  If you are doing a sponsored event we can supply you with sponsorship forms, ROHHAD awareness T-shirts & wristbands just get in touch for prices.

You may come up with a unique and brilliant fundraising idea different to our suggestions and we can’t wait to hear all about it.

Helping in any way you can will bring us one step closer to finding a cure for our amazing ROHHAD children.

To everyone who fundraises for The ROHHAD Association, thank you for your time and efforts. Be proud of yourself for you are helping bring The ROHHAD Association and its researchers one step closer to finding a cure.

Currently, we have 2 support pages:

Adult’s/Parents support Group on Facebook,

Children’s Support Group on Facebook.

THE ROHHAD ASSOCIATION FACEBOOK PAGE

Please e-mail us for more details on how to be added.

We are in the process of creating an online forum for both the public and the parents/carers children of ROHHAD.

We are also on Twitter, Where you can tweet your support of The ROHHAD Association

THE ROHHAD ASSOCIATION’S TWITTER FEED

 

 

Spread the word

Champion our charity by spreading the word and raising awareness in your local area. You will be our greatest assets by helping to raise the profile of our charity, or even some of our local events.

Ask yourself the following;

  • Do you want to do something a little different to help us raise research funds?
  • Do you share our passion for finding a cure?
  • Do you have spare time and want to help?
  • Do you have a good knowledge of your local community?

If you answered yes to the questions above, and have some time to spare, support us in your area and help raise awareness and funds for The ROHHAD Association.

 

We have developed an extensive research plan and expect positions of employment within the ROHHAD Association research team to become available as soon as the funds allow.

We will be posting and keeping the public updated, with regards to how the funds are spent in helping build our research team, and positions that become available on the team.

If you are interested in joining our research team and are a scientist/medical professional or lab technician with experience or an interest in research into rare medical conditions then please contact us. To apply, please forward your cv alongside a letter detailing why you would like to join us.

This Campaign has ended. No more pledges can be made.