ROHHADAssociation Archives - ROHHAD Association

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Robert Downey Jr has Gone Mad For ROHHAD !! Aarons Wish is unfolding !

https://www.facebook.com/robertdowneyjr/videos/858723674296099/?t=10

Wooohoo  the real IronMan has done Aaron’s Challenge and he is calling on all Marvel FANS, the Avengers and fellow Marvel Universe Heroes to do the muddy puddle challenge too 

Aaron would like to say –

“This has been the best time of my whole life ever and I am so excited to see everyone having fun and helping my special friends by doing my muddy puddle #GOMADJUMPFORROHHAD challenge. THANK YOU everyone who helps us. I love you so so much IronMan, your my best friend and I always knew you would want to help us love Aaron”

This was by far the most magical moment of Aarons Life ! and his thoughts on the challenge “It was Awesome!” Aarons weekend with his Favourite Hero finished in style with his wish being fulfilled as he watched Robert get wet and muddy to help all of the ROHHAD children ! Aarons Heart is so full of HOPE right now for all of his special friends ! The Mission is to defeat the Evil ROHHAD and He cannot wait to see you all Go Mad and Jump For ROHHAD

To all who HELP by donating & taking part in the challenge we say a MASSIVE THANK YOU it is with your help we’re gonna find a cure !

Robert and Susan Downey Random Act Funding charity are this year supporting the ROHHAD Association charity. They are running an incredible competition and you can get involved, donate and enter via www.crowdrise.com/RDJ .  If you donate $10 you will be entered into the prize draw to win 2 VIP Tickets to the premiere of   #InfinityWar and hang out at the after party !!

Special Thanks to Robert Downey Jr, Susan Downey and #TeamDowneyfor their Incredible support. The HOPE that all of the families affected by ROHHAD now have would not be happening without YOU!

To everyone who helped Aaron reach his beloved,  IronMan! from the ducklings to family friends and when you wish upon a star (who grant terminal wishes) We thank you so Much ! (you all know who you are)

 

Hello all, with our selfie game on point, Aaron and I are devising ways we can #gomadforrohhad…Donate just $10 bux…

Posted by Robert Downey Jr on Saturday, 24 March 2018

 

https://www.facebook.com/robertdowneyjr/videos/854392214729245/

 

6

Celtic Football Club ROHHAD Raffle

 

The ROHHAD Association charity has some incredible prizes to give away in this raffle and entering could not be easier, simply fill in your contact details and select how many entries into the raffle you wish to purchase and process your payment.
https://www.trybooking.co.uk/DAC
click the link above to enter the raffle thanks
All proceeds from the Raffle will go directly to the ROHHAD Association charity. 3 Top Prizes please see the photographs and information below.

We have 3 Top Raffle Prizes to give away. 1. Top Prize – Framed Celtic Football Shirt Autographed by the Invincible Treble Winning Team 2016/2017.      2.  Runner Up Prize – Framed Artur Boric Autographed Goalkeeper gloves he wore during his time playing for Celtic Football Club.  3. Third Prize – Football Autographed by Celtic Football Club Invincible Treble Winning Team 2016/2017 within a presentation box.  Raffle Entries cost £3.00 per entry or 2 entries for £5.00.  You can Purchase your raffle entries anytime between Friday the 26th of October 2017 and Monday the 18th of December when online entries close at 2pm.   The Raffle will be drawn on Monday the 18th of December at 7.30pm, this will be done via a LIVE Video feed on the charity facebook page.  The winners will be notified on Tuesday the 19th of December.  Please read our full terms and conditions before purchasing an entry into this raffle these can be found on our trybooking event page.  Thank You to all who participate for more information about the charity your helping please visit our website www.rohhadassociation.com and or our social media pages on Facebook and Twitter.

 

 

5

Delighted to introduce our New Trustee Stephen Whyte

SW2The Team at ROHHAD Association would like to give a huge warm welcome to our new Trustee Stephen Whyte.

Stephen is very passionate about the ROHHAD Association and has been helping the charity consistently from our very first fundraiser almost 2 years ago until now.

Stephen has vast experience in fundraising and has organised events in the past for various charities including our own 3 Peak Challenge Team.  Stephen is a hard working Father and Husband but he always makes the time to help at all of our fundraisers often bringing his family along to help support us too.

His dedication and passion for helping the ROHHAD children has led to the natural progression of being appointed into the role of Trustee.

So welcome aboard Team ROHHAD Association Avengers Stephen ! We thank you for all your hard work so far in volunteering and we look forward to working with you as Trustee.   Here he is at some of our events !

sw3peaks

stephen

Ian and Stephen Snowdon

sw3

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