GoMADJUMPforROHHAD Archives - ROHHAD Association

14

Robert Downey Jr has Gone Mad For ROHHAD !! Aarons Wish is unfolding !

https://www.facebook.com/robertdowneyjr/videos/858723674296099/?t=10

Wooohoo  the real IronMan has done Aaron’s Challenge and he is calling on all Marvel FANS, the Avengers and fellow Marvel Universe Heroes to do the muddy puddle challenge too 

Aaron would like to say –

“This has been the best time of my whole life ever and I am so excited to see everyone having fun and helping my special friends by doing my muddy puddle #GOMADJUMPFORROHHAD challenge. THANK YOU everyone who helps us. I love you so so much IronMan, your my best friend and I always knew you would want to help us love Aaron”

This was by far the most magical moment of Aarons Life ! and his thoughts on the challenge “It was Awesome!” Aarons weekend with his Favourite Hero finished in style with his wish being fulfilled as he watched Robert get wet and muddy to help all of the ROHHAD children ! Aarons Heart is so full of HOPE right now for all of his special friends ! The Mission is to defeat the Evil ROHHAD and He cannot wait to see you all Go Mad and Jump For ROHHAD

To all who HELP by donating & taking part in the challenge we say a MASSIVE THANK YOU it is with your help we’re gonna find a cure !

Robert and Susan Downey Random Act Funding charity are this year supporting the ROHHAD Association charity. They are running an incredible competition and you can get involved, donate and enter via www.crowdrise.com/RDJ .  If you donate $10 you will be entered into the prize draw to win 2 VIP Tickets to the premiere of   #InfinityWar and hang out at the after party !!

Special Thanks to Robert Downey Jr, Susan Downey and #TeamDowneyfor their Incredible support. The HOPE that all of the families affected by ROHHAD now have would not be happening without YOU!

To everyone who helped Aaron reach his beloved,  IronMan! from the ducklings to family friends and when you wish upon a star (who grant terminal wishes) We thank you so Much ! (you all know who you are)

 

Hello all, with our selfie game on point, Aaron and I are devising ways we can #gomadforrohhad…Donate just $10 bux…

Posted by Robert Downey Jr on Saturday, 24 March 2018

 

https://www.facebook.com/robertdowneyjr/videos/854392214729245/

 

5

We had a Jumping Good Time In Edinburgh !!

JGSI

The amazing charity When You Wish Upon A Star went the extra mile to help make Aaron Hunters wish to raise awareness of his rare life threatening disease come true.  We had the most amazing time at their Ceilidh in the Park event, during this years Fringe Festival in Edinburgh.

Our Awesome friend and amazing comedian Dominic Holland led the Record breaking crowd in the  BIGGEST EVER Attempt at  #GOMADJUMPFORROHHAD and it was wonderful to see.

Aaron loved every second of it and despite suffering from anxiety related to his ROHHAD, he managed to appear on stage and watch everyone take part in his challenge.  He is so grateful to all who took part.  Here are some photos of this amazing day and a link to the Live video of the challenge

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https://www.facebook.com/Rohhadassociation/

visit the ROHHAD Association Facebook Page to view the live video

4

Edinburgh Fringe Festival Mass GOMADJUMPFORROHHAD challenge

JGSI

The amazing charity When You Wish Upon A Star is going the extra mile to help make Aaron Hunters wish to raise awareness of his rare life threatening disease come true.  They are hosting an incredible event during this years Fringe Festival in Edinburgh and they and we are inviting you along to take part !! If Your Free PLEASE Come along and join us in our BIGGEST EVER Attempt at  #GOMADJUMPFORROHHAD 

On the 13th August 2017 between 11am-2pm When You Wish Upon A Star have organised an event which is “Ceilidh in the Park for Wishes”  when they will be holding an open air Ceilidh with a 10 piece Ceilidh band and DJ.   At the Ceilidh their intention is try and break the World Record for the biggest Gay Gordons dance. This will be in West Princess Street Gardens, Ross Bandstand, Edinburgh.

Towards the end of the Ceilidh between 1.45pm-2pm they are planning  to ask everyone taking part at the event (and anybody else who may be watching on the side lines), if they would like to join in and help them to grant the part of Aaron’s Wish which is raising the awareness for ROHHAD and for them to take on his challenge #GOMADJUMPFORROHHAD at the event.

They are arranging for a paddling pool with water in it on the Ross Bandstand Stage and the Incredible Comedian Dominic Holland will Jump in the paddling pool and lead the crowd for at least 1 full minute which Aaron’s Challenge requests.  Dominic has been an amazing support to Aaron’s Challenge so far and he cannot wait to take part himself.  He is hoping everyone who is there will join him !!

We too are hoping that everyone in the audience will jump along with Dominic at the same time and perhaps create the largest crowd to do the #GOMADJUMPFORROHHAD challenge yet !!  

You will be in good company if you decide to come along and join in at this massive attempt at Aaron’s social media challenge, as we are hoping that Robert Downey Jr and his fellow AVENGERS will have completed their challenge that they promised Aaron they would do.  Not only that but thousands of other people around the world have attempted the challenge and had a lot of fun in the process all whilst helping Aaron raise global awareness and funds to find a cure.

Hope to See You There !!

To participate in the Ceilidh and World Record attempt for the charity When You Wish Upon A Star you can sign up using these links – 

Charity Website: http://www.whenyouwishuponastar.org.uk/forthcoming-events-scotland.html?detail=238&r=0

Edinburgh Festival: https://tickets.edfringe.com/whats-on/ceilidh-in-the-park-1

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