Our Blog

Picnic In The Park

The ROHHAD Association is super excited about our 1st ever charity Event ‘ Picnic In the Park’ happening on Saturday the 1st of August at Moss O Balloch Park.  It is going to be an amazing fun family day out, we have pony rides, a magician, face painting, famous children’s characters, beat the goalie, musical entertainment, bouncy castles, our own stall and over 200 amazing prizes to give away on the day through our tombola and raffle and much more.  Its FREE entry with a small charge for all activities.  Its open from 11am until 4pm.  If your free come along with the kids for a great day out in Balloch and help support our charity.  See you there ! only 7 sleeps to go !!

Our website

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Welcome to the home of The ROHHAD Association.

We are really pleased that we have our website up and running, we will be adding more content and different pages over the coming months, so watch out for them.

We have a leading expert in the United Kingdom Dr G Shaikh, Paediatric Endocrinologist  writing some detailed information to add to the site, in the coming weeks.

We will also be posting and advertising for job applicants with regards to our research team.

We have set up a Facebook support page, for the parents of ROHHAD Children, and also a Page for the Children of ROHHAD to talk to each other ( This is monitored by two adults who will make sure that the children’s safety and well being is paramount.)

THE ROHHAD ASSOCIATION’S FACEBOOK

We are on Twitter, if you would like to follow us, which will be used to help highlight ROHHAD Events, and Fundraisers.

THE ROHHAD ASSOCIATION’S TWITTER

Thank you to everyone who has helped and your continued support in helping, The ROHHAD Association achieve its goals, helping the children suffering with ROHHAD.

This Campaign has ended. No more pledges can be made.