ROHHAD News Archives - Page 4 of 7 - ROHHAD Association

2

Psychic Night – Evening of Mediumship 3rd of August 2013

pshycic night Auguste 2017

Barry Hogg, Ricky Martin, Alan Welsh and Joanne Davies.  If Psychics and mediums interest you this is one night you do not want to miss.

Tickets cost £10.00 per person and include 3 hours worth of Mediumship and Psychic demonstrations.  Tickets are already selling for this event and are available to purchase now.  Call today to make sure you have yours.

Doors open at 6.30pm and the evening begins 7pm sharp, the evening will finish at 10.30pm.

Private Readings are available on the night at an additional cost of £15.00 per person for a 15 minute reading. These are limited and will be booked on a first come first serve basis.  Readings can be booked in advance.

Refreshments of Tea, Coffee, Water, Juice and Home Baking will be available for a small additional cost before the evening begins and during the interval from 8.30pm until 9pm.

There will also be a raffle held on the night with some fantastic prizes donated by local businesses to be won.

Contact Lisa on 07917225276 or Louise on 07881100083 to buy your tickets.

You can pay for them online and they will be available to collect on the night or pay in cash and collect from the charity office in advance.

0

Christmas Light Switch On – 2017 Loch Lomond Shores

christmas 2017

We are delighted to share with you all that we have been chosen as one of the charities to be collecting this year at Loch Lomond Shores Christmas Light Switch on.

The date of the Light Switch on is Sunday the 19th of November.

We will be present all day at this incredible event.  We will be sharing full details soon about what to expect at this incredible event and how our charity will be participating in that.

We cannot wait to spend the day at Loch Lomond Shores when they switch the Christmas Lights On.  It is always a magical fun filled day that all the family can enjoy…………….. more details to follow soon

loch lomond shores 4

lomond shores 3

lomond shores 2

 

1

Aarons Wish AaronNeedsIronMan will be fullfilled Read this Post for the Most Incredible News

We have the MOST INCREDIBLE NEWS TO SHARE WITH EVERYONE

Aaron Hunter’s Wish #AaronNeedsIronman is happening and Aaron has spoken to Robert Downey Jr

Please read the full post below written by Aarons Mum and Dad

 

 

Our beautiful brave boy Aaron has asked us to share the most amazing news with his special friends fighting ROHHAD Around the world and with everyone who has supported his #AaronNeedsIronman campaign.

It is with the Biggest of Smiles and Happiest of Hearts we share with you all the most incredible news. Wishes can come true and we are so happy to share that our brave boy Aarons WISH to speak to his favourite hero Iron Man and ask for his help to raise awareness for all the children with ROHHAD, has happened !! Thanks to the charity When You Wish Upon a Star

Robert Downey Jr has seen Aaron’s video appeal and the support and kindness he has shown to him since has just been incredible. Aaron received a special FaceTime call from his favourite hero that was magical and such a blessing to watch unfold. During their chat Aaron asked him the question that he has been so desperate to ask;

‘Can you please do my #GOMADJUMPFORROHHAD Challenge? and help me raise awareness for all the ROHHAD Kids around the world?’

The most AMAZING NEWS is that Robert said YES!!! He told him he would love to do his challenge and made him feel so special.

Iron Man has answered our brave boys plea for help and in doing so has made him the happiest little boy in the world! He has not stopped smiling since and told us he feels he is the luckiest boy in the world because he is now best friends with Ironman!!

Thanks to Robert Downey Jr, his team and the team at Marvel Universal; Aaron has had the most incredible time of his life. He has recently met Captain America, Falcon and Black Widow during a visit to the film set that seen Aaron have the most magical time.

Aaron has asked us to please say a SPECIAL THANK YOU to everyone who has supported him and helped make his wish to help his special friends come true.

Robert and his fellow Avengers have an incredible fan base and messages of support have been flooding in. To all of the Ducklings (RDJ Fans), Marvel and Avengers fans, friends, family, members of the public and every celebrity who watched liked and shared Aaron’s video appeal on Twitter and Facebook THANK YOU!. We have no doubt your support has helped us reach Robert for Aaron.

When You Wish Upon A Star Charity took Aaron into their hearts and wanted to help him. They are a wonderful children’s charity who have helped thousands of terminally ill children’s wishes come true and they have just helped make Aaron’s wish come true too. We could not have reached Robert without their help and support and we just want to say a very special THANK YOU to them for helping Aaron achieve his WISH and dream.

When You Wish Upon A Star charity, the ROHHAD Association charity and the press have all been instrumental in helping raise awareness and helping Aaron reach Iron Man too. THANK YOU!

MASSIVE Thank You to Robert Downey Jnr, his own team and the team at Marvel; John, Russell, Chris Evans, Anthony Mackie and Scarlet Johansson for helping make Aaron so incredibly happy. We are deeply grateful for their help and support for Aaron’s Wish to help the other children battling the rare life threatening disease ROHHAD.

The memories of his time talking to his favourite heroes on FaceTime and on set will never leave Aaron or us, they are truly magical and will be cherished forever.

The best bit though is still to come and Aaron cannot wait to see Robert take on his challenge he reckons that it will be EPIC!!

THANK YOU THANK YOU THANK YOU to everyone who has supported Aaron it would never have happened without all of you!

 

 

This Campaign has ended. No more pledges can be made.