Uncategorized Archives - ROHHAD Association

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ROHHAD Charity Office Appeal – DIY SOS

The ROHHAD Association is a charity that has been set up to help raise awareness and funds to find a cure for the rare life threatening and terminal disease ROHHAD that affects less than 100 children worldwide.

As our charity grows we are now badly in need of our own office and storage space.  We currently run office duties from the Hunter Family Home however recently we have outgrown this and in order for our charity to move forward and continue to grow; it really needs its own office.

The Hunter family have now donated a garage building on their land that we can renovate and transform into the ROHHAD Association Head Office.  The electricity costs of running the office building will be donated to the charity by the Hunter Family for a minimum of 3 years.  Therefore costing the charity less money in the long run to operate from the building than to rent an office space local to the charity.

The estimate to renovate the building and turn it into an office is just over £6000.00 however thanks to a local building company, those costs have been reduced considerably.

Ricky Murdoch from Murdoch Properties Ltd has kindly donated some materials, as well as his own Labour to help.

However we do still have to find £3000.00.   This will cover the cost of some materials we need to purchase, further labour costs,  computing equipment, storage and office equipment for the Office.

Can you please help by making a donation today ? THANKS

To donate click our donate now button and choose justgiving or paypal please type reference – OfficeDIYSOS when processing your donation.  You can also text a donation by writing ‘ROHH01 £5.00’ to 70070.  You can donate any amount just change the £5 to whatever you wish to donate.

Perhaps you can help in other ways  by donating computing equipment ? materials etc please call the office number on 01389 753900 or email at rohhadassociation@gmail.com if you think you can help.

All funds raised via this campaign will be used to pay expenses relating to the charity office building renovation and office equipment.  Should there be any surplus funds upon completion of works those funds will be transferred automatically to the ROHHAD Association main bank account and used to fund research into the rare life threatening disease ROHHAD.  we need your help

Picnic In The Park

The ROHHAD Association is super excited about our 1st ever charity Event ‘ Picnic In the Park’ happening on Saturday the 1st of August at Moss O Balloch Park.  It is going to be an amazing fun family day out, we have pony rides, a magician, face painting, famous children’s characters, beat the goalie, musical entertainment, bouncy castles, our own stall and over 200 amazing prizes to give away on the day through our tombola and raffle and much more.  Its FREE entry with a small charge for all activities.  Its open from 11am until 4pm.  If your free come along with the kids for a great day out in Balloch and help support our charity.  See you there ! only 7 sleeps to go !!

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