Raising Awareness

BagPacking Event for ROHHAD at B&M’s largest UK store

We NEED YOUR HELP calling all family, friends and our local community.  The ROHHAD Association will be BagPacking in B&M dunbarton store on Saturday and Sunday the 5th and 6th of December. This is expected to be the stores busiest weekend of the year. We would love to have buckets and packers on every till (8 in total) can you spare an hour or 2 or 3 !! The store has a policy adults only packing bags ! So we need as many of you as possible. This is a wonderful opportunity to raise much needed funds and we thank B&M for allowing us to help their customers on their busiest weekend and hopefully the customers will help us in return by donating. Call me on 07917225276 if you can help have a whole timetable to fill!! Finally if your shopping that weekend in B&M we will see you there ! Please be generous and make a donation Thank you ! Elisabeth (Aaron's mummy x)

Exciting news – Christmas Light Switch On at Loch Lomond and ‘Light The World For You’

So excited to let you all know that YOUR Radio have invited Lauren Hunter and Singer station along to perform the charity single at the roadshow and Christmas light switch on in Loch Lomond this year. They will be performing the charity single 'Light the World For You' at the Christmas Light Switch on in both Alexandria and Dunbarton. Come along if you can and see the children perform the beautiful and poignant song that Lauren co-wrote for Aaron and all the ROHHAD children. They will be performing in the hour before the lights are switched on at 5pm and it may even be just before the lights go on ! The days are not to be missed and are often lots of fun for all the kids and family. See you all there ! So excited  PS don't forget to visit our charity stall on the day and buy a copy of the charity single !!.

Details - Alexandria Light Switch On event Saturday the 28th of November 2015 from 12pm until 5.30pm, Alexandria Main Street, West Dunbartonshire

 

Dunbarton Light Switch On event Sunday the 29th of November 2015 from 12pm until 5.30pm, Dunbarton High Street, West Dunbartonshire

 

https://www.facebook.com/WDCCouncil/posts/918300211589208:0

 

 


Raising Awareness with Clyde1 Fm radio

Massive thank you to Clyde 1 Fm Radio for helping the ROHHAD Association raise awareness. Awareness and fundraising are vital to help UK research into ROHHAD begin. We need to find a cure and help improve the lives of the amazing children affected by ROHHAD. Because the children are so rare governments won't fund medical research. Please help us your support is vital to all the children with ROHHAD and their siblings, parents and families. Thank you

https://www.facebook.com/lisa.hunter.944/posts/700948476672603

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