AaronNeedsIronman Archives - ROHHAD Association

5

We had a Jumping Good Time In Edinburgh !!

JGSI

The amazing charity When You Wish Upon A Star went the extra mile to help make Aaron Hunters wish to raise awareness of his rare life threatening disease come true.  We had the most amazing time at their Ceilidh in the Park event, during this years Fringe Festival in Edinburgh.

Our Awesome friend and amazing comedian Dominic Holland led the Record breaking crowd in the  BIGGEST EVER Attempt at  #GOMADJUMPFORROHHAD and it was wonderful to see.

Aaron loved every second of it and despite suffering from anxiety related to his ROHHAD, he managed to appear on stage and watch everyone take part in his challenge.  He is so grateful to all who took part.  Here are some photos of this amazing day and a link to the Live video of the challenge

webupdate1webupdate2 webupdate3 webupdate4wu1 wu2 wu3 wu4

wu5 wu6 wu7 wu8

https://www.facebook.com/Rohhadassociation/

visit the ROHHAD Association Facebook Page to view the live video

4

Edinburgh Fringe Festival Mass GOMADJUMPFORROHHAD challenge

JGSI

The amazing charity When You Wish Upon A Star is going the extra mile to help make Aaron Hunters wish to raise awareness of his rare life threatening disease come true.  They are hosting an incredible event during this years Fringe Festival in Edinburgh and they and we are inviting you along to take part !! If Your Free PLEASE Come along and join us in our BIGGEST EVER Attempt at  #GOMADJUMPFORROHHAD 

On the 13th August 2017 between 11am-2pm When You Wish Upon A Star have organised an event which is “Ceilidh in the Park for Wishes”  when they will be holding an open air Ceilidh with a 10 piece Ceilidh band and DJ.   At the Ceilidh their intention is try and break the World Record for the biggest Gay Gordons dance. This will be in West Princess Street Gardens, Ross Bandstand, Edinburgh.

Towards the end of the Ceilidh between 1.45pm-2pm they are planning  to ask everyone taking part at the event (and anybody else who may be watching on the side lines), if they would like to join in and help them to grant the part of Aaron’s Wish which is raising the awareness for ROHHAD and for them to take on his challenge #GOMADJUMPFORROHHAD at the event.

They are arranging for a paddling pool with water in it on the Ross Bandstand Stage and the Incredible Comedian Dominic Holland will Jump in the paddling pool and lead the crowd for at least 1 full minute which Aaron’s Challenge requests.  Dominic has been an amazing support to Aaron’s Challenge so far and he cannot wait to take part himself.  He is hoping everyone who is there will join him !!

We too are hoping that everyone in the audience will jump along with Dominic at the same time and perhaps create the largest crowd to do the #GOMADJUMPFORROHHAD challenge yet !!  

You will be in good company if you decide to come along and join in at this massive attempt at Aaron’s social media challenge, as we are hoping that Robert Downey Jr and his fellow AVENGERS will have completed their challenge that they promised Aaron they would do.  Not only that but thousands of other people around the world have attempted the challenge and had a lot of fun in the process all whilst helping Aaron raise global awareness and funds to find a cure.

Hope to See You There !!

To participate in the Ceilidh and World Record attempt for the charity When You Wish Upon A Star you can sign up using these links – 

Charity Website: http://www.whenyouwishuponastar.org.uk/forthcoming-events-scotland.html?detail=238&r=0

Edinburgh Festival: https://tickets.edfringe.com/whats-on/ceilidh-in-the-park-1

1

Aarons Wish AaronNeedsIronMan will be fullfilled Read this Post for the Most Incredible News

We have the MOST INCREDIBLE NEWS TO SHARE WITH EVERYONE

Aaron Hunter’s Wish #AaronNeedsIronman is happening and Aaron has spoken to Robert Downey Jr

Please read the full post below written by Aarons Mum and Dad

 

 

Our beautiful brave boy Aaron has asked us to share the most amazing news with his special friends fighting ROHHAD Around the world and with everyone who has supported his #AaronNeedsIronman campaign.

It is with the Biggest of Smiles and Happiest of Hearts we share with you all the most incredible news. Wishes can come true and we are so happy to share that our brave boy Aarons WISH to speak to his favourite hero Iron Man and ask for his help to raise awareness for all the children with ROHHAD, has happened !! Thanks to the charity When You Wish Upon a Star

Robert Downey Jr has seen Aaron’s video appeal and the support and kindness he has shown to him since has just been incredible. Aaron received a special FaceTime call from his favourite hero that was magical and such a blessing to watch unfold. During their chat Aaron asked him the question that he has been so desperate to ask;

‘Can you please do my #GOMADJUMPFORROHHAD Challenge? and help me raise awareness for all the ROHHAD Kids around the world?’

The most AMAZING NEWS is that Robert said YES!!! He told him he would love to do his challenge and made him feel so special.

Iron Man has answered our brave boys plea for help and in doing so has made him the happiest little boy in the world! He has not stopped smiling since and told us he feels he is the luckiest boy in the world because he is now best friends with Ironman!!

Thanks to Robert Downey Jr, his team and the team at Marvel Universal; Aaron has had the most incredible time of his life. He has recently met Captain America, Falcon and Black Widow during a visit to the film set that seen Aaron have the most magical time.

Aaron has asked us to please say a SPECIAL THANK YOU to everyone who has supported him and helped make his wish to help his special friends come true.

Robert and his fellow Avengers have an incredible fan base and messages of support have been flooding in. To all of the Ducklings (RDJ Fans), Marvel and Avengers fans, friends, family, members of the public and every celebrity who watched liked and shared Aaron’s video appeal on Twitter and Facebook THANK YOU!. We have no doubt your support has helped us reach Robert for Aaron.

When You Wish Upon A Star Charity took Aaron into their hearts and wanted to help him. They are a wonderful children’s charity who have helped thousands of terminally ill children’s wishes come true and they have just helped make Aaron’s wish come true too. We could not have reached Robert without their help and support and we just want to say a very special THANK YOU to them for helping Aaron achieve his WISH and dream.

When You Wish Upon A Star charity, the ROHHAD Association charity and the press have all been instrumental in helping raise awareness and helping Aaron reach Iron Man too. THANK YOU!

MASSIVE Thank You to Robert Downey Jnr, his own team and the team at Marvel; John, Russell, Chris Evans, Anthony Mackie and Scarlet Johansson for helping make Aaron so incredibly happy. We are deeply grateful for their help and support for Aaron’s Wish to help the other children battling the rare life threatening disease ROHHAD.

The memories of his time talking to his favourite heroes on FaceTime and on set will never leave Aaron or us, they are truly magical and will be cherished forever.

The best bit though is still to come and Aaron cannot wait to see Robert take on his challenge he reckons that it will be EPIC!!

THANK YOU THANK YOU THANK YOU to everyone who has supported Aaron it would never have happened without all of you!

 

 

This Campaign has ended. No more pledges can be made.