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B&M Fundraising HUGE SUCCESS

We are very happy to announce that the weekend Bag-Packing in B&M Dunbarton Store has raised a staggering £2150.30 (plus a couple of euros, a battery and a token for loch Lomond shores !!). This is a Fantastic amount and the ROHHAD Association is deeply grateful to all who worked hard packing bags and raising awareness for ROHHAD. We are also truly grateful to all those who donated; every last one of you have given us so much hope for the future and a Possible cure being found. We are so grateful to the B&M team at Dunbarton all of the staff were incredible and helpful too, thanks for allowing us the opportunity to raise funds and also much needed awareness for ROHHAD. Finally our children fighting ROHHAD face the biggest of battles. The battle for their Lives being the biggest. Statistically it is one we have been told they are unlikely to win; however with all of you fighting with them the odds will hopefully increase in their favour. Thank you all of you PLEASE continue to support us if you can and help us raise awareness and enough funds to help find a cure for the children affected. Continue to GoMADForROHHAD and be a ROHHAD Avenger !! Yours gratefully the ROHHAD Association xx For all those who wanted to do more to help please visit our full website and follow us on Facebook and Twitter for updates on fundraising events in 2016, you may also wish to purchase our charity single 'Light the World For You' available on iTunes Spotify etc artist is Lauren Hunter and all proceeds come to the charity thanks !!

Exciting news – Christmas Light Switch On at Loch Lomond and ‘Light The World For You’

So excited to let you all know that YOUR Radio have invited Lauren Hunter and Singer station along to perform the charity single at the roadshow and Christmas light switch on in Loch Lomond this year. They will be performing the charity single 'Light the World For You' at the Christmas Light Switch on in both Alexandria and Dunbarton. Come along if you can and see the children perform the beautiful and poignant song that Lauren co-wrote for Aaron and all the ROHHAD children. They will be performing in the hour before the lights are switched on at 5pm and it may even be just before the lights go on ! The days are not to be missed and are often lots of fun for all the kids and family. See you all there ! So excited PS don't forget to visit our charity stall on the day and buy a copy of the charity single !!.

Details - Alexandria Light Switch On event Saturday the 28th of November 2015 from 12pm until 5.30pm, Alexandria Main Street, West Dunbartonshire

Dunbarton Light Switch On event Sunday the 29th of November 2015 from 12pm until 5.30pm, Dunbarton High Street, West Dunbartonshire

https://www.facebook.com/WDCCouncil/posts/918300211589208:0

Raising Awareness with Clyde1 Fm radio

Massive thank you to Clyde 1 Fm Radio for helping the ROHHAD Association raise awareness. Awareness and fundraising are vital to help UK research into ROHHAD begin. We need to find a cure and help improve the lives of the amazing children affected by ROHHAD. Because the children are so rare governments won't fund medical research. Please help us your support is vital to all the children with ROHHAD and their siblings, parents and families. Thank you

https://www.facebook.com/lisa.hunter.944/posts/700948476672603

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